Emotional Intelligence Report |Von Willebrand Disease

Surface Behaviors Show All

  1. Ability to treat bleeding episodes easily
  2. Active lifestyle despite the condition
  3. Applying to graduate school for marine science
  4. Beginning stages of starting a non-profit in the vWD community
  5. Being involved in community outreach with church
  6. Being married for 15 years
  7. Checking lab values in the patient portal
  8. Childhood spent in the hospital
  9. Constant bleeds
  10. Delayed diagnosis of con willebrands
  11. Diagnosed with VWD at 1 month old
  12. Discussing iron supplement usage
  13. Doctor listens and allows input on medication choice
  14. Dream of becoming a nurse in a hospital
  15. Easy bruising
  16. Engaging in high-risk activities
  17. Enjoying coffee, painting, and karate (pre-COVID)
  18. Experience with blood transfusion after pregnancy
  19. Frequent nosebleeds
  20. Having 3 boys, 2 with a diagnosis
  21. History of heavy bleeding
  22. Living with a diagnosed condition
  23. Long periods
  24. Managing the condition with Stimate and Amicar
  25. Needing medical records transferred
  26. Nosebleeds requiring transfusions, surgical cautery, and packing
  27. On new medication and following prophy schedule
  28. Previous misdiagnosis of heavy bleeding as normal
  29. Rationing medication due to lack of insurance
  30. Receiving a call from the doctor's MA

Vulnerable Moments Show All

  1. Adjusting to a new role as a stay-at-home mom and advocate
  2. Balancing passion for activities with the risk of injury
  3. Balancing the demands of marriage and parenting
  4. Being diagnosed with vWD at 12 years old
  5. Being diagnosed with VWD at 16 years old
  6. Being open to influence in making decisions related to vWD
  7. Being pregnant and concerned about managing VWD
  8. Concern for grandchildren being tested for vWd
  9. Considering seeking medication at urgent care
  10. Coping with a family member's diagnosis
  11. Coping with the limitations imposed by COVID on activities like karate
  12. Diagnosis of vWd in daughter at age 12
  13. Emotional impact of living with a bleeding disorder
  14. Emotional vulnerability during nosebleeds and medical procedures
  15. Experiencing frustration and confusion about the doctor's decisions
  16. Facing the possibility of hospitalization due to a bleed
  17. Facing the possibility of waiting six weeks for a referral
  18. Family testing revealing own vWd diagnosis
  19. Feeling dismissed by the first hematologist
  20. Feeling excited and hopeful about the new medication
  21. Feeling exposed and in need of support during the appointment
  22. Feeling exposed and in need of support during the diagnostic process
  23. Feeling exposed and in need of support during the journey
  24. Feeling exposed and unsure about bleeding disorders
  25. Feeling exposed due to family history of VWD

Choice Points Show All

  1. Assessing the risks and benefits of certain activities
  2. Choice to have grandchildren tested for vWd
  3. Choice to undergo testing for vWd
  4. Choosing between financial stability and proper healthcare coverage
  5. Choosing to follow prophy schedule
  6. Choosing to marry and commit to a long-term relationship
  7. Choosing to pursue hobbies like painting and karate
  8. Choosing to ration medication to avoid hospitalization
  9. Choosing to seek medical help for nosebleeds and bruising
  10. Choosing to start a new medication and prophy
  11. Considering starting a non-profit in the vWD community
  12. Considering the impact of VWD on pursuing graduate school
  13. Deciding how to manage the condition without insurance coverage
  14. Deciding to advocate for treatment of unchecked hemophilia
  15. Deciding to continue participating in high-risk activities despite the condition
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