Emotional Intelligence Report |Von Willebrand Disease

Surface Behaviors

S. No. Behavior Content
1 Ability to treat bleeding episodes easily Link Content
2 Active lifestyle despite the condition Link Content
3 Applying to graduate school for marine science Link Content
4 Beginning stages of starting a non-profit in the vWD community Link Content
5 Being involved in community outreach with church Link Content
6 Being married for 15 years Link Content
7 Checking lab values in the patient portal Link Content
8 Childhood spent in the hospital Link Content
9 Constant bleeds Link Content
10 Delayed diagnosis of con willebrands Link Content
11 Diagnosed with VWD at 1 month old Link Content
12 Discussing iron supplement usage Link Content
13 Doctor listens and allows input on medication choice Link Content
14 Dream of becoming a nurse in a hospital Link Content
15 Easy bruising Link Content
16 Engaging in high-risk activities Link Content
17 Enjoying coffee, painting, and karate (pre-COVID) Link Content
18 Experience with blood transfusion after pregnancy Link Content
19 Frequent nosebleeds Link Content
20 Having 3 boys, 2 with a diagnosis Link Content
21 History of heavy bleeding Link Content
22 Living with a diagnosed condition Link Content
23 Long periods Link Content
24 Managing the condition with Stimate and Amicar Link Content
25 Needing medical records transferred Link Content
26 Nosebleeds requiring transfusions, surgical cautery, and packing Link Content
27 On new medication and following prophy schedule Link Content
28 Previous misdiagnosis of heavy bleeding as normal Link Content
29 Rationing medication due to lack of insurance Link Content
30 Receiving a call from the doctor's MA Link Content
31 Regular hospital visits Link Content
32 Reliance on RICE (Rest, Ice, Compression, Elevation) Link Content
33 Requesting a referral to OHSU's HTC Link Content
34 Requesting a specific medication (TXA) Link Content
35 Requesting treatment for unchecked hemophilia Link Content
36 Seeking medical advice for similar problems Link Content
37 Seeking medical help for a 6-week period Link Content
38 Severe periods Link Content
39 Starting a new medication and prophy Link Content
40 Transitioning from teaching to being a stay-at-home mom and advocate Link Content
41 Unexplained nosebleeds Link Content
42 Uninsured status Link Content
43 Valuing time with friends and family Link Content
44 Waiting for lab results Link Content

Vulnerable Moments Show All

  1. Adjusting to a new role as a stay-at-home mom and advocate
  2. Balancing passion for activities with the risk of injury
  3. Balancing the demands of marriage and parenting
  4. Being diagnosed with vWD at 12 years old
  5. Being diagnosed with VWD at 16 years old
  6. Being open to influence in making decisions related to vWD
  7. Being pregnant and concerned about managing VWD
  8. Concern for grandchildren being tested for vWd
  9. Considering seeking medication at urgent care
  10. Coping with a family member's diagnosis
  11. Coping with the limitations imposed by COVID on activities like karate
  12. Diagnosis of vWd in daughter at age 12
  13. Emotional impact of living with a bleeding disorder
  14. Emotional vulnerability during nosebleeds and medical procedures
  15. Experiencing frustration and confusion about the doctor's decisions
  16. Facing the possibility of hospitalization due to a bleed
  17. Facing the possibility of waiting six weeks for a referral
  18. Family testing revealing own vWd diagnosis
  19. Feeling dismissed by the first hematologist
  20. Feeling excited and hopeful about the new medication
  21. Feeling exposed and in need of support during the appointment
  22. Feeling exposed and in need of support during the diagnostic process
  23. Feeling exposed and in need of support during the journey
  24. Feeling exposed and unsure about bleeding disorders
  25. Feeling exposed due to family history of VWD

Choice Points Show All

  1. Assessing the risks and benefits of certain activities
  2. Choice to have grandchildren tested for vWd
  3. Choice to undergo testing for vWd
  4. Choosing between financial stability and proper healthcare coverage
  5. Choosing to follow prophy schedule
  6. Choosing to marry and commit to a long-term relationship
  7. Choosing to pursue hobbies like painting and karate
  8. Choosing to ration medication to avoid hospitalization
  9. Choosing to seek medical help for nosebleeds and bruising
  10. Choosing to start a new medication and prophy
  11. Considering starting a non-profit in the vWD community
  12. Considering the impact of VWD on pursuing graduate school
  13. Deciding how to manage the condition without insurance coverage
  14. Deciding to advocate for treatment of unchecked hemophilia
  15. Deciding to continue participating in high-risk activities despite the condition
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