Emotional Intelligence Report |Autosomal Dominant Polycystic Kidney Disease

Surface Behaviors Show All

  1. Abnormal kidney ultrasound results
  2. Advice for partners: patience, communication, motivation
  3. Asking questions
  4. Avoidance of contact sports
  5. Choosing to play golf instead
  6. Commitment to staying healthy for the son
  7. Connecting with support groups and sharing experiences
  8. Conversations with father about ADPKD management
  9. Desire to appear strong and unaffected by ADPKD
  10. Desire to share experiences and provide accurate information
  11. Diagnosed at the age of 12
  12. Diagnosis of ADPKD at age 12
  13. Emergency surgery for a burst blood vessel in the brain
  14. Experience of a severe headache
  15. Experiencing back pain
  16. Family history of ADPKD
  17. Fear of partner's reaction to ADPKD
  18. Focus on early disease management
  19. Focus on the positives of living with ADPKD
  20. Going back to school
  21. Growing complexity of conversations about ADPKD with father
  22. High blood pressure at a young age
  23. Hospital stay for 15 days
  24. Husband's vocal desire to have children
  25. Ignoring and suppressing the disease
  26. Importance of kidney measurement
  27. Involvement in kidney disease research
  28. Kidney size measurement as a marker for disease progression
  29. Lack of knowledge about ADPKD in family
  30. Measurement of kidney size for predicting disease progression

Vulnerable Moments Show All

  1. Balancing motherhood and managing the disease
  2. Balancing trust in doctors with personal involvement
  3. Concerns about disease progression
  4. Concerns about the son's reaction to the news
  5. Contemplating the decision to have children
  6. Coping with the emotional and psychological aspects of living with ADPKD
  7. Coping with the emotional impact of ADPKD
  8. Coping with the emotional impact of the diagnosis
  9. Dealing with the potential progression of the disease
  10. Decision to avoid contact sports
  11. Desire for accurate and helpful information
  12. Diagnosis at the age of 12
  13. Difficult conversation about ADPKD
  14. Discovering the potential severity of the disease
  15. Discussions with father about the disease
  16. Discussions with father about the disease and its impact
  17. Emotional impact of ADPKD diagnosis
  18. Emphasizing the role of communication in the relationship
  19. Facing the decision to give up contact sports
  20. Facing the reality of a genetic disease
  21. Facing uncertainty about the progression of the disease
  22. Fear and uncertainty about the future
  23. Fear of passing the disease to the child
  24. Feeling alone and isolated in dealing with ADPKD
  25. Feeling helpless in not being able to change the disease

Choice Points Show All

  1. Accepting the need for emergency surgery
  2. Choosing a nephrologist for further evaluation
  3. Choosing to advocate for oneself in medical appointments
  4. Choosing to be proactive in managing the disease
  5. Choosing to educate oneself about ADPKD
  6. Choosing to engage in conversations about ADPKD with others
  7. Choosing to follow a low sodium diet and manage blood pressure
  8. Choosing to measure kidney size for predicting disease progression
  9. Choosing to open up about the disease and seek support
  10. Choosing to pursue a degree related to genetic epidemiology
  11. Choosing to share experiences and resources with others
  12. Choosing to stay positive and hopeful in the face of unknowns
  13. Committing to staying healthy and actively managing the disease
  14. Committing to supporting and motivating each other
  15. Considering the importance of baseline tests
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