Emotional Intelligence Report |Autosomal Dominant Polycystic Kidney Disease

Surface Behaviors Show All

  1. Abnormal kidney ultrasound results
  2. Advice for partners: patience, communication, motivation
  3. Asking questions
  4. Avoidance of contact sports
  5. Choosing to play golf instead
  6. Commitment to staying healthy for the son
  7. Connecting with support groups and sharing experiences
  8. Conversations with father about ADPKD management
  9. Desire to appear strong and unaffected by ADPKD
  10. Desire to share experiences and provide accurate information
  11. Diagnosed at the age of 12
  12. Diagnosis of ADPKD at age 12
  13. Emergency surgery for a burst blood vessel in the brain
  14. Experience of a severe headache
  15. Experiencing back pain
  16. Family history of ADPKD
  17. Fear of partner's reaction to ADPKD
  18. Focus on early disease management
  19. Focus on the positives of living with ADPKD
  20. Going back to school
  21. Growing complexity of conversations about ADPKD with father
  22. High blood pressure at a young age
  23. Hospital stay for 15 days
  24. Husband's vocal desire to have children
  25. Ignoring and suppressing the disease
  26. Importance of kidney measurement
  27. Involvement in kidney disease research
  28. Kidney size measurement as a marker for disease progression
  29. Lack of knowledge about ADPKD in family
  30. Measurement of kidney size for predicting disease progression

Vulnerable Moments

S. No. Moments Content
1 Balancing motherhood and managing the disease Link Content
2 Balancing trust in doctors with personal involvement Link Content
3 Concerns about disease progression Link Content
4 Concerns about the son's reaction to the news Link Content
5 Contemplating the decision to have children Link Content
6 Coping with the emotional and psychological aspects of living with ADPKD Link Content
7 Coping with the emotional impact of ADPKD Link Content
8 Coping with the emotional impact of the diagnosis Link Content
9 Dealing with the potential progression of the disease Link Content
10 Decision to avoid contact sports Link Content
11 Desire for accurate and helpful information Link Content
12 Diagnosis at the age of 12 Link Content
13 Difficult conversation about ADPKD Link Content
14 Discovering the potential severity of the disease Link Content
15 Discussions with father about the disease Link Content
16 Discussions with father about the disease and its impact Link Content
17 Emotional impact of ADPKD diagnosis Link Content
18 Emphasizing the role of communication in the relationship Link Content
19 Facing the decision to give up contact sports Link Content
20 Facing the reality of a genetic disease Link Content
21 Facing uncertainty about the progression of the disease Link Content
22 Fear and uncertainty about the future Link Content
23 Fear of passing the disease to the child Link Content
24 Feeling alone and isolated in dealing with ADPKD Link Content
25 Feeling helpless in not being able to change the disease Link Content
26 Feeling overwhelmed with information Link Content
27 Feeling pain and uncertainty Link Content
28 Feeling the impact of ADPKD on health and relationship Link Content
29 Finding a sense of identity beyond the disease Link Content
30 Finding strength and support in the partnership Link Content
31 Lack of resources for support Link Content
32 Missing out on celebrating important milestones due to the disease Link Content
33 Need for early disease management Link Content
34 Need for immediate medical attention during a health crisis Link Content
35 Need for support and understanding from loved ones Link Content
36 Needing guidance on disease progression Link Content
37 Not knowing where to go for help Link Content
38 Processing the diagnosis and its implications Link Content
39 Realizing the importance of kidney measurement Link Content
40 Receiving the diagnosis of ADPKD and seeing cysts on the kidneys Link Content
41 Receiving the diagnosis of ADPKD at a young age Link Content
42 Recognizing the need for self-advocacy Link Content
43 Regretting not seeking earlier testing Link Content
44 Regretting past choices and habits Link Content
45 Reluctance to stay in the hospital for treatment Link Content
46 Seeking a supportive healthcare team Link Content
47 Seeking support and resources for managing ADPKD Link Content
48 Seeking support and understanding from family members Link Content
49 Sharing personal experiences and resources Link Content
50 Sharing personal experiences with others to raise awareness and find support Link Content
51 Wondering about the future with ADPKD Link Content

Choice Points Show All

  1. Accepting the need for emergency surgery
  2. Choosing a nephrologist for further evaluation
  3. Choosing to advocate for oneself in medical appointments
  4. Choosing to be proactive in managing the disease
  5. Choosing to educate oneself about ADPKD
  6. Choosing to engage in conversations about ADPKD with others
  7. Choosing to follow a low sodium diet and manage blood pressure
  8. Choosing to measure kidney size for predicting disease progression
  9. Choosing to open up about the disease and seek support
  10. Choosing to pursue a degree related to genetic epidemiology
  11. Choosing to share experiences and resources with others
  12. Choosing to stay positive and hopeful in the face of unknowns
  13. Committing to staying healthy and actively managing the disease
  14. Committing to supporting and motivating each other
  15. Considering the importance of baseline tests
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