Emotional Intelligence Report |Autosomal Dominant Polycystic Kidney Disease

Surface Behaviors

S. No. Behavior Content
1 Abnormal kidney ultrasound results Link Content
2 Advice for partners: patience, communication, motivation Link Content
3 Asking questions Link Content
4 Avoidance of contact sports Link Content
5 Choosing to play golf instead Link Content
6 Commitment to staying healthy for the son Link Content
7 Connecting with support groups and sharing experiences Link Content
8 Conversations with father about ADPKD management Link Content
9 Desire to appear strong and unaffected by ADPKD Link Content
10 Desire to share experiences and provide accurate information Link Content
11 Diagnosed at the age of 12 Link Content
12 Diagnosis of ADPKD at age 12 Link Content
13 Emergency surgery for a burst blood vessel in the brain Link Content
14 Experience of a severe headache Link Content
15 Experiencing back pain Link Content
16 Family history of ADPKD Link Content
17 Fear of partner's reaction to ADPKD Link Content
18 Focus on early disease management Link Content
19 Focus on the positives of living with ADPKD Link Content
20 Going back to school Link Content
21 Growing complexity of conversations about ADPKD with father Link Content
22 High blood pressure at a young age Link Content
23 Hospital stay for 15 days Link Content
24 Husband's vocal desire to have children Link Content
25 Ignoring and suppressing the disease Link Content
26 Importance of kidney measurement Link Content
27 Involvement in kidney disease research Link Content
28 Kidney size measurement as a marker for disease progression Link Content
29 Lack of knowledge about ADPKD in family Link Content
30 Measurement of kidney size for predicting disease progression Link Content
31 Need for regular doctor's appointments and discussions with family Link Content
32 Need to manage blood pressure and follow a low sodium diet Link Content
33 No contact sports due to ADPKD Link Content
34 Official diagnosis at 19 Link Content
35 Participating in charity events and fundraising for ADPKD research Link Content
36 Playing golf as an alternative Link Content
37 Positive mindset despite scientific knowledge of the disease Link Content
38 Pregnancy as a turning point Link Content
39 Pursuing a degree in genetic epidemiology Link Content
40 Questioning the purpose of having children Link Content
41 Realization of the right to have a child Link Content
42 Receiving a diagnosis Link Content
43 Reflecting on past choices and regrets Link Content
44 Reflecting on past decisions Link Content
45 Reluctance to discuss health Link Content
46 Researching the disease Link Content
47 Seeking advice Link Content
48 Seeking information about ADPKD and its progression Link Content
49 Seeking medical help Link Content
50 Severe stomach cramps Link Content
51 Sharing personal experiences and information about ADPKD Link Content
52 Strong family history of ADPKD Link Content
53 Stubbornness and its impact on health Link Content
54 Support from family members in managing the disease Link Content
55 Talking to doctors Link Content
56 Transformation of stubbornness into advocacy Link Content
57 Uncertainty about when to tell the son about ADPKD Link Content

Vulnerable Moments Show All

  1. Balancing motherhood and managing the disease
  2. Balancing trust in doctors with personal involvement
  3. Concerns about disease progression
  4. Concerns about the son's reaction to the news
  5. Contemplating the decision to have children
  6. Coping with the emotional and psychological aspects of living with ADPKD
  7. Coping with the emotional impact of ADPKD
  8. Coping with the emotional impact of the diagnosis
  9. Dealing with the potential progression of the disease
  10. Decision to avoid contact sports
  11. Desire for accurate and helpful information
  12. Diagnosis at the age of 12
  13. Difficult conversation about ADPKD
  14. Discovering the potential severity of the disease
  15. Discussions with father about the disease
  16. Discussions with father about the disease and its impact
  17. Emotional impact of ADPKD diagnosis
  18. Emphasizing the role of communication in the relationship
  19. Facing the decision to give up contact sports
  20. Facing the reality of a genetic disease
  21. Facing uncertainty about the progression of the disease
  22. Fear and uncertainty about the future
  23. Fear of passing the disease to the child
  24. Feeling alone and isolated in dealing with ADPKD
  25. Feeling helpless in not being able to change the disease

Choice Points Show All

  1. Accepting the need for emergency surgery
  2. Choosing a nephrologist for further evaluation
  3. Choosing to advocate for oneself in medical appointments
  4. Choosing to be proactive in managing the disease
  5. Choosing to educate oneself about ADPKD
  6. Choosing to engage in conversations about ADPKD with others
  7. Choosing to follow a low sodium diet and manage blood pressure
  8. Choosing to measure kidney size for predicting disease progression
  9. Choosing to open up about the disease and seek support
  10. Choosing to pursue a degree related to genetic epidemiology
  11. Choosing to share experiences and resources with others
  12. Choosing to stay positive and hopeful in the face of unknowns
  13. Committing to staying healthy and actively managing the disease
  14. Committing to supporting and motivating each other
  15. Considering the importance of baseline tests
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