Emotional Intelligence Report |Autosomal Dominant Polycystic Kidney Disease

Surface Behaviors Show All

  1. Abnormal kidney ultrasound results
  2. Advice for partners: patience, communication, motivation
  3. Asking questions
  4. Avoidance of contact sports
  5. Choosing to play golf instead
  6. Commitment to staying healthy for the son
  7. Connecting with support groups and sharing experiences
  8. Conversations with father about ADPKD management
  9. Desire to appear strong and unaffected by ADPKD
  10. Desire to share experiences and provide accurate information
  11. Diagnosed at the age of 12
  12. Diagnosis of ADPKD at age 12
  13. Emergency surgery for a burst blood vessel in the brain
  14. Experience of a severe headache
  15. Experiencing back pain
  16. Family history of ADPKD
  17. Fear of partner's reaction to ADPKD
  18. Focus on early disease management
  19. Focus on the positives of living with ADPKD
  20. Going back to school
  21. Growing complexity of conversations about ADPKD with father
  22. High blood pressure at a young age
  23. Hospital stay for 15 days
  24. Husband's vocal desire to have children
  25. Ignoring and suppressing the disease
  26. Importance of kidney measurement
  27. Involvement in kidney disease research
  28. Kidney size measurement as a marker for disease progression
  29. Lack of knowledge about ADPKD in family
  30. Measurement of kidney size for predicting disease progression

Vulnerable Moments Show All

  1. Balancing motherhood and managing the disease
  2. Balancing trust in doctors with personal involvement
  3. Concerns about disease progression
  4. Concerns about the son's reaction to the news
  5. Contemplating the decision to have children
  6. Coping with the emotional and psychological aspects of living with ADPKD
  7. Coping with the emotional impact of ADPKD
  8. Coping with the emotional impact of the diagnosis
  9. Dealing with the potential progression of the disease
  10. Decision to avoid contact sports
  11. Desire for accurate and helpful information
  12. Diagnosis at the age of 12
  13. Difficult conversation about ADPKD
  14. Discovering the potential severity of the disease
  15. Discussions with father about the disease
  16. Discussions with father about the disease and its impact
  17. Emotional impact of ADPKD diagnosis
  18. Emphasizing the role of communication in the relationship
  19. Facing the decision to give up contact sports
  20. Facing the reality of a genetic disease
  21. Facing uncertainty about the progression of the disease
  22. Fear and uncertainty about the future
  23. Fear of passing the disease to the child
  24. Feeling alone and isolated in dealing with ADPKD
  25. Feeling helpless in not being able to change the disease

Choice Points

S. No. Choice Content
1 Accepting the need for emergency surgery Link Content
2 Choosing a nephrologist for further evaluation Link Content
3 Choosing to advocate for oneself in medical appointments Link Content
4 Choosing to be proactive in managing the disease Link Content
5 Choosing to educate oneself about ADPKD Link Content
6 Choosing to engage in conversations about ADPKD with others Link Content
7 Choosing to follow a low sodium diet and manage blood pressure Link Content
8 Choosing to measure kidney size for predicting disease progression Link Content
9 Choosing to open up about the disease and seek support Link Content
10 Choosing to pursue a degree related to genetic epidemiology Link Content
11 Choosing to share experiences and resources with others Link Content
12 Choosing to stay positive and hopeful in the face of unknowns Link Content
13 Committing to staying healthy and actively managing the disease Link Content
14 Committing to supporting and motivating each other Link Content
15 Considering the importance of baseline tests Link Content
16 Deciding on the frequency of follow-up visits Link Content
17 Deciding to actively participate in events and support groups for ADPKD Link Content
18 Deciding to ask questions and seek more information Link Content
19 Deciding to disclose the ADPKD diagnosis to others Link Content
20 Deciding to face ADPKD as a team Link Content
21 Deciding to focus on addressing health inequities in underrepresented populations Link Content
22 Deciding to go back to school despite the diagnosis Link Content
23 Deciding to go to the hospital during a severe headache Link Content
24 Deciding to have a child despite the risks Link Content
25 Deciding to have kidneys measured to manage disease progression Link Content
26 Deciding to prioritize kidney measurement and health habits Link Content
27 Deciding to seek medical attention for back pain Link Content
28 Decision to seek medical help for high blood pressure and stomach cramps Link Content
29 Decision to share experiences and provide information Link Content
30 Decision to share or withhold health information Link Content
31 Determining the right time to disclose the disease to the son Link Content
32 Embracing personal goals and aspirations beyond the disease Link Content
33 Embracing the need for self-advocacy Link Content
34 Involvement in kidney disease research Link Content
35 Making a commitment to not underestimate the disease's impact Link Content
36 Making choices that prioritize the son's well-being and support Link Content
37 Making the choice to communicate openly with partner Link Content
38 Making the choice to prioritize health over personal celebrations Link Content
39 Making the choice to share personal experiences and information about ADPKD Link Content
40 Making the decision to not let ADPKD define or limit oneself Link Content
41 Opting for kidney size measurement to predict disease progression Link Content
42 Pursuing a degree in genetic epidemiology Link Content
43 Seeking support and guidance from family members Link Content
44 Seeking support and resources for managing the disease Link Content
45 Seeking support from the ADPKD community Link Content
46 Selecting healthcare providers who prioritize the patient's well-being Link Content
47 Transitioning from stubbornness to advocacy Link Content
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