Emotional Intelligence Report |Von Willebrand Disease

Surface Behaviors Show All

  1. Ability to treat bleeding episodes easily
  2. Active lifestyle despite the condition
  3. Applying to graduate school for marine science
  4. Beginning stages of starting a non-profit in the vWD community
  5. Being involved in community outreach with church
  6. Being married for 15 years
  7. Checking lab values in the patient portal
  8. Childhood spent in the hospital
  9. Constant bleeds
  10. Delayed diagnosis of con willebrands
  11. Diagnosed with VWD at 1 month old
  12. Discussing iron supplement usage
  13. Doctor listens and allows input on medication choice
  14. Dream of becoming a nurse in a hospital
  15. Easy bruising
  16. Engaging in high-risk activities
  17. Enjoying coffee, painting, and karate (pre-COVID)
  18. Experience with blood transfusion after pregnancy
  19. Frequent nosebleeds
  20. Having 3 boys, 2 with a diagnosis
  21. History of heavy bleeding
  22. Living with a diagnosed condition
  23. Long periods
  24. Managing the condition with Stimate and Amicar
  25. Needing medical records transferred
  26. Nosebleeds requiring transfusions, surgical cautery, and packing
  27. On new medication and following prophy schedule
  28. Previous misdiagnosis of heavy bleeding as normal
  29. Rationing medication due to lack of insurance
  30. Receiving a call from the doctor's MA

Vulnerable Moments Show All

  1. Adjusting to a new role as a stay-at-home mom and advocate
  2. Balancing passion for activities with the risk of injury
  3. Balancing the demands of marriage and parenting
  4. Being diagnosed with vWD at 12 years old
  5. Being diagnosed with VWD at 16 years old
  6. Being open to influence in making decisions related to vWD
  7. Being pregnant and concerned about managing VWD
  8. Concern for grandchildren being tested for vWd
  9. Considering seeking medication at urgent care
  10. Coping with a family member's diagnosis
  11. Coping with the limitations imposed by COVID on activities like karate
  12. Diagnosis of vWd in daughter at age 12
  13. Emotional impact of living with a bleeding disorder
  14. Emotional vulnerability during nosebleeds and medical procedures
  15. Experiencing frustration and confusion about the doctor's decisions
  16. Facing the possibility of hospitalization due to a bleed
  17. Facing the possibility of waiting six weeks for a referral
  18. Family testing revealing own vWd diagnosis
  19. Feeling dismissed by the first hematologist
  20. Feeling excited and hopeful about the new medication
  21. Feeling exposed and in need of support during the appointment
  22. Feeling exposed and in need of support during the diagnostic process
  23. Feeling exposed and in need of support during the journey
  24. Feeling exposed and unsure about bleeding disorders
  25. Feeling exposed due to family history of VWD

Choice Points

S. No. Choice Content
1 Assessing the risks and benefits of certain activities Link Content
2 Choice to have grandchildren tested for vWd Link Content
3 Choice to undergo testing for vWd Link Content
4 Choosing between financial stability and proper healthcare coverage Link Content
5 Choosing to follow prophy schedule Link Content
6 Choosing to marry and commit to a long-term relationship Link Content
7 Choosing to pursue hobbies like painting and karate Link Content
8 Choosing to ration medication to avoid hospitalization Link Content
9 Choosing to seek medical help for nosebleeds and bruising Link Content
10 Choosing to start a new medication and prophy Link Content
11 Considering starting a non-profit in the vWD community Link Content
12 Considering the impact of VWD on pursuing graduate school Link Content
13 Deciding how to manage the condition without insurance coverage Link Content
14 Deciding to advocate for treatment of unchecked hemophilia Link Content
15 Deciding to continue participating in high-risk activities despite the condition Link Content
16 Deciding to disclose the usage of an iron supplement Link Content
17 Deciding to discuss the 6-week period and request TXA Link Content
18 Deciding to get involved in community outreach with church Link Content
19 Deciding to have children despite the risk of passing on the diagnosis Link Content
20 Deciding to request a referral to OHSU's HTC Link Content
21 Deciding to seek medical advice for similar problems Link Content
22 Deciding to take new medication Link Content
23 Deciding to trust a new hematologist Link Content
24 Deciding to wait for lab results before proceeding with treatment Link Content
25 Deciding whether to wait six weeks for the referral or seek medication at urgent care Link Content
26 Decision to prioritize self-care and manage VWD while working as a nurse Link Content
27 Decision to pursue a career in nursing despite health challenges Link Content
28 Decision to seek medical help for heavy bleeding Link Content
29 Decision to seek medical help for nosebleeds Link Content
30 Decision to treat bleeding episodes Link Content
31 Decision to trust the ENT's opinion and seek further diagnosis Link Content
32 Determining the best approach to managing bleeds Link Content
33 Evaluating the need for additional support and guidance Link Content
34 Making decisions about healthcare and treatment options Link Content
35 Making decisions to prioritize time with friends and family Link Content
36 Opting for proactive management of VWD Link Content
37 Pushing doctors for more testing Link Content
38 Seeking answers and treatment Link Content
39 Selecting a doctor who listens and involves patient in decision-making Link Content
40 Transitioning from teaching to being a stay-at-home mom and advocate Link Content
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