Emotional Intelligence Report |Von Willebrand Disease

Surface Behaviors Show All

  1. Ability to treat bleeding episodes easily
  2. Active lifestyle despite the condition
  3. Applying to graduate school for marine science
  4. Beginning stages of starting a non-profit in the vWD community
  5. Being involved in community outreach with church
  6. Being married for 15 years
  7. Checking lab values in the patient portal
  8. Childhood spent in the hospital
  9. Constant bleeds
  10. Delayed diagnosis of con willebrands
  11. Diagnosed with VWD at 1 month old
  12. Discussing iron supplement usage
  13. Doctor listens and allows input on medication choice
  14. Dream of becoming a nurse in a hospital
  15. Easy bruising
  16. Engaging in high-risk activities
  17. Enjoying coffee, painting, and karate (pre-COVID)
  18. Experience with blood transfusion after pregnancy
  19. Frequent nosebleeds
  20. Having 3 boys, 2 with a diagnosis
  21. History of heavy bleeding
  22. Living with a diagnosed condition
  23. Long periods
  24. Managing the condition with Stimate and Amicar
  25. Needing medical records transferred
  26. Nosebleeds requiring transfusions, surgical cautery, and packing
  27. On new medication and following prophy schedule
  28. Previous misdiagnosis of heavy bleeding as normal
  29. Rationing medication due to lack of insurance
  30. Receiving a call from the doctor's MA

Vulnerable Moments

S. No. Moments Content
1 Adjusting to a new role as a stay-at-home mom and advocate Link Content
2 Balancing passion for activities with the risk of injury Link Content
3 Balancing the demands of marriage and parenting Link Content
4 Being diagnosed with vWD at 12 years old Link Content
5 Being diagnosed with VWD at 16 years old Link Content
6 Being open to influence in making decisions related to vWD Link Content
7 Being pregnant and concerned about managing VWD Link Content
8 Concern for grandchildren being tested for vWd Link Content
9 Considering seeking medication at urgent care Link Content
10 Coping with a family member's diagnosis Link Content
11 Coping with the limitations imposed by COVID on activities like karate Link Content
12 Diagnosis of vWd in daughter at age 12 Link Content
13 Emotional impact of living with a bleeding disorder Link Content
14 Emotional vulnerability during nosebleeds and medical procedures Link Content
15 Experiencing frustration and confusion about the doctor's decisions Link Content
16 Facing the possibility of hospitalization due to a bleed Link Content
17 Facing the possibility of waiting six weeks for a referral Link Content
18 Family testing revealing own vWd diagnosis Link Content
19 Feeling dismissed by the first hematologist Link Content
20 Feeling excited and hopeful about the new medication Link Content
21 Feeling exposed and in need of support during the appointment Link Content
22 Feeling exposed and in need of support during the diagnostic process Link Content
23 Feeling exposed and in need of support during the journey Link Content
24 Feeling exposed and unsure about bleeding disorders Link Content
25 Feeling exposed due to family history of VWD Link Content
26 Feeling helpless and unsure about the next steps in treatment Link Content
27 Feeling uncertain about the cause of the extended bleeding Link Content
28 Financial strain due to medication rationing Link Content
29 Hemorrhaging during childbirth Link Content
30 Managing the condition without proper healthcare coverage Link Content
31 Navigating the challenges of raising children with a diagnosis Link Content
32 Needing support and guidance in managing the condition Link Content
33 Needing support in managing the disease Link Content
34 Open to influence in making treatment decisions Link Content
35 Receiving a diagnosis at a young age Link Content
36 Receiving the initial diagnosis Link Content
37 Seeking a more empathetic hematologist Link Content
38 Seeking more testing Link Content
39 Seeking support from friends and family Link Content
40 Uncertainty about the future and pursuing graduate education Link Content
41 Vulnerability during childhood hospital stays Link Content
42 Vulnerability during the pursuit of the dream to become a nurse Link Content

Choice Points Show All

  1. Assessing the risks and benefits of certain activities
  2. Choice to have grandchildren tested for vWd
  3. Choice to undergo testing for vWd
  4. Choosing between financial stability and proper healthcare coverage
  5. Choosing to follow prophy schedule
  6. Choosing to marry and commit to a long-term relationship
  7. Choosing to pursue hobbies like painting and karate
  8. Choosing to ration medication to avoid hospitalization
  9. Choosing to seek medical help for nosebleeds and bruising
  10. Choosing to start a new medication and prophy
  11. Considering starting a non-profit in the vWD community
  12. Considering the impact of VWD on pursuing graduate school
  13. Deciding how to manage the condition without insurance coverage
  14. Deciding to advocate for treatment of unchecked hemophilia
  15. Deciding to continue participating in high-risk activities despite the condition
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