| 1 |
Attending medical appointments |
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| 2 |
Managing symptoms |
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| 3 |
Researching treatment options |
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| 4 |
Seeking emotional support |
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| 5 |
Seeking medical advice |
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| 6 |
Seeking second opinions |
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| 7 |
Seeking support from family and friends |
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| 8 |
Adhering to a specific diet |
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| 9 |
Adhering to a specific diet or exercise regimen recommended by healthcare professionals |
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| 10 |
Adhering to medication regimen |
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| 11 |
Adhering to treatment plan |
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| 12 |
Adjusting daily routines |
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| 13 |
Adjusting lifestyle and daily routines to accommodate the disease |
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| 14 |
Adjusting lifestyle habits |
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| 15 |
Adjusting treatment plan |
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| 16 |
Advocating for oneself |
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| 17 |
Aging and approaching 50 |
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| 18 |
Answering questions about medical history |
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| 19 |
Asking questions about bladder cancer in doctor appointments |
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| 20 |
Attending bladder cancer awareness events |
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| 21 |
Attending bladder cancer support group meetings |
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| 22 |
Attending doctor appointments |
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| 23 |
Attending support groups or therapy sessions for emotional support |
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| 24 |
Back or abdominal pain |
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| 25 |
Being called back by the doctor |
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| 26 |
Being informed about adrenal gland dysfunction |
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| 27 |
Being informed about thyroid dysfunction |
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| 28 |
Being informed by Urologist about the rough condition of the bladder |
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| 29 |
Being NED (No Evidence of Disease) |
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| 30 |
Being recommended to see a Urologist |
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| 31 |
Being told to come in that afternoon |
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| 32 |
Blood in urine |
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| 33 |
Blood tests |
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| 34 |
Bone pain |
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| 35 |
Calling to see if I could see my primary physician |
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| 36 |
Change in driving behavior |
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| 37 |
Changes in urine color or odor |
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| 38 |
Choosing a treatment option |
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| 39 |
Communicating with healthcare providers about concerns or changes in condition |
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| 40 |
Considering future decisions |
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| 41 |
Considering Keytruda as a potential treatment |
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| 42 |
Continuing treatment until the fifth infusion |
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| 43 |
CT scan |
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| 44 |
Dealing with insurance and financial issues related to the disease |
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| 45 |
Deciding on intravesical therapy |
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| 46 |
Desiring to retain bladder |
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| 47 |
Diagnosis of full menopause |
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| 48 |
Difficulty being a passenger |
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| 49 |
Difficulty in controlling urine flow |
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| 50 |
Difficulty showering |
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| 51 |
Difficulty standing for long periods |
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| 52 |
Discontinuing BCG treatments for a few months |
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| 53 |
Discovering the recurrence of cancer |
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| 54 |
Discussing bladder cancer with family and friends |
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| 55 |
Discussing treatment options with healthcare professionals |
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| 56 |
Doctor discussing concerns and mentioning the need for a biopsy |
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| 57 |
Doctor discussing the treatment plan of BCG |
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| 58 |
Doctor explaining the diagnosis of T1 HG CIS |
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| 59 |
Doctor informing the patient about the diagnosis of cancer |
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| 60 |
Embracing the silver-haired crone phase |
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| 61 |
Engaging in physical therapy |
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| 62 |
Engaging in self-care |
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| 63 |
Enjoying retirement |
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| 64 |
Evaluating the impact of retirement on health |
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| 65 |
Experiencing adverse gland reactions |
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| 66 |
Experiencing bladder inflammation |
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| 67 |
Experiencing frequent urination |
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| 68 |
Experiencing hot flashes and brain fog |
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| 69 |
Experiencing limited mobility and difficulty performing daily activities |
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| 70 |
Experiencing pain after lumbar fusion surgery |
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| 71 |
Experiencing pain and severe blood in urine after BCG treatment |
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| 72 |
Experiencing side effects |
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| 73 |
Experiencing side effects after the first infusion |
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| 74 |
Experiencing side effects from medications or treatments |
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| 75 |
Exploring alternative therapies |
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| 76 |
Exploring hobbies and activities |
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| 77 |
Fatigue and weakness |
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| 78 |
Feeling close to passing out |
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| 79 |
Feeling constantly worn out |
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| 80 |
Feeling scared and relieved |
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| 81 |
Feeling something off in the body |
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| 82 |
Feeling tired despite getting enough sleep |
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| 83 |
Following bladder cancer advocacy organizations on social media |
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| 84 |
Gaining back weight and strength |
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| 85 |
Getting weaker |
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| 86 |
Going for regular check-ups and follow-up appointments |
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| 87 |
Going to work the next morning |
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| 88 |
Hormone testing |
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| 89 |
Increased anxiety while driving |
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| 90 |
Initiating search for alternative treatment options |
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| 91 |
Introducing chemo into the bladder |
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| 92 |
Joining online support groups for bladder cancer patients |
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| 93 |
Leaning over on my wife |
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| 94 |
Losing 50 pounds |
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| 95 |
Losing weight without trying |
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| 96 |
Loss of appetite |
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| 97 |
Maintaining close observation |
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| 98 |
Making appointments with an endocrinologist |
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| 99 |
Making lifestyle changes |
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| 100 |
Making plans for the future |
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| 101 |
Managing side effects |
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| 102 |
Meeting with the doctor |
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| 103 |
Monitoring and tracking symptoms and progress |
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| 104 |
Monitoring bladder cancer recurrence rates |
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| 105 |
Monitoring health condition |
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| 106 |
Monitoring progress |
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| 107 |
Monitoring symptoms |
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| 108 |
Need for frequent bathroom breaks |
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| 109 |
Needing guidance on navigating menopause |
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| 110 |
No pain or other symptoms |
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| 111 |
Not functioning well |
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| 112 |
Noticing bright red blood in urine |
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| 113 |
Observing bladder through cystoscopes, CT scans, and cytology |
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| 114 |
Pain or discomfort during urination |
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| 115 |
Participating in bladder cancer clinical trials |
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| 116 |
Participating in clinical trials |
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| 117 |
Participating in support groups |
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| 118 |
Passing out for over 5 minutes |
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| 119 |
PET scan |
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| 120 |
Preparing for another TURBT |
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| 121 |
Reading articles about bladder cancer treatment options |
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| 122 |
Realizing inability to continue BCG treatments |
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| 123 |
Realizing refractoriness to BCG |
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| 124 |
Receiving 18th instillation of BCG |
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| 125 |
Receiving a diagnosis |
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| 126 |
Recommendation for estrogen patch |
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| 127 |
Recurrence of CIS multiple times |
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| 128 |
Recurrent bladder infections |
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| 129 |
Reduced bladder capacity |
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| 130 |
Researching and educating oneself about the disease and treatment options |
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| 131 |
Researching bladder cancer treatment side effects |
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| 132 |
Scheduling cystoscope |
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| 133 |
Scheduling exams |
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| 134 |
Scheduling surgery for the patient |
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| 135 |
Searching for bladder cancer symptoms |
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| 136 |
Seeking information about retirement |
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| 137 |
Seeking information and support |
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| 138 |
Seeking second opinions for bladder cancer diagnosis |
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| 139 |
Seeking second opinions or alternative treatment options |
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| 140 |
Sharing bladder cancer treatment experiences with other patients |
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| 141 |
Sharing personal bladder cancer stories on social media |
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| 142 |
Sitting in the waiting room |
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| 143 |
Starting proper medication |
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| 144 |
Starting treatment |
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| 145 |
Sudden decline in mental health |
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| 146 |
Swelling in the legs |
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| 147 |
Taking frequent naps during the day |
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| 148 |
Taking prescribed medication |
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| 149 |
Taking prescribed medications for pain management |
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| 150 |
Talking with my doctor |
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| 151 |
Tracking bladder cancer symptoms in a journal |
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| 152 |
Tracking progress |
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| 153 |
Trying Keytruda treatment |
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| 154 |
Turning to Gemcitabine for therapy |
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| 155 |
Undergoing CT scan |
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| 156 |
Undergoing diagnostic tests |
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| 157 |
Undergoing multiple tests |
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| 158 |
Undergoing multiple TURBTs |
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| 159 |
Undergoing physical therapy and rehabilitation |
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| 160 |
Undergoing rounds of Gemcitabine |
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| 161 |
Undergoing subsequent cystoscope and cytology |
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| 162 |
Undergoing the first TURBT procedure |
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| 163 |
Undergoing X-rays |
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| 164 |
Urinary tract infections |
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| 165 |
Visiting the Oncologist |
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| 166 |
Weight loss |
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| 167 |
Working more than desired in retirement |
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| 168 |
X-rays |
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