| 1 |
Receiving a diagnosis |
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| 2 |
Adjusting to changes in physical appearance |
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| 3 |
Coping with the emotional impact of the disease |
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| 4 |
Coping with the loss of independence |
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| 5 |
Making decisions about end-of-life care |
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| 6 |
Navigating the healthcare system |
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| 7 |
Adjusting to lifestyle changes |
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| 8 |
Adjusting to the failure of Enbrel treatment |
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| 9 |
Adjusting to the need for lifestyle changes |
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| 10 |
Adjusting to the reduced lung function |
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| 11 |
After being told lungs sounded fine by the doctor |
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| 12 |
After receiving the diagnosis |
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| 13 |
Anxiety about the future and disease progression |
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| 14 |
Balancing hope and realism regarding treatment options |
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| 15 |
Balancing independence with the need for assistance on bad days |
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| 16 |
Balancing the demands of caregiving |
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| 17 |
Balancing the desire to be active with limitations |
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| 18 |
Balancing the need for oxygen support |
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| 19 |
Balancing the responsibilities of daily chores and self-care |
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| 20 |
Being open to influence and suggestions from others |
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| 21 |
Communicating with loved ones about the disease |
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| 22 |
Concerns about energy levels |
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| 23 |
Concerns about energy levels and potential side effects |
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| 24 |
Concerns about the impact on lifespan and quality of life |
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| 25 |
Considering starting a new medication (Cellcept) |
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| 26 |
Coping with bronchiectasis |
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| 27 |
Coping with emotional distress |
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| 28 |
Coping with pain or discomfort |
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| 29 |
Coping with the elevated RF levels |
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| 30 |
Coping with the fear of disease progression |
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| 31 |
Coping with the impact of acute respiratory failure |
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| 32 |
Coping with the impact on social and family life |
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| 33 |
Coping with the persistence of coughing |
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| 34 |
Coping with the potential limitations imposed by the disease |
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| 35 |
Coping with the uncertainty of future ILD flares |
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| 36 |
Dealing with chronic lower lung fibrosis |
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| 37 |
Dealing with pain or discomfort |
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| 38 |
Dealing with repeated lung infections |
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| 39 |
Dealing with side effects of medication |
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| 40 |
Dealing with stigma or discrimination |
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| 41 |
Dealing with the financial burden of medication |
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| 42 |
Dealing with the limitations imposed by chronic illnesses |
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| 43 |
Dealing with the loss of independence |
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| 44 |
Dealing with the physical and emotional recovery from the biopsy |
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| 45 |
Dealing with the possibility of a non-idiopathic diagnosis |
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| 46 |
Dealing with the potential progression of the disease |
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| 47 |
Dealing with the slow progress in recovery |
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| 48 |
Dealing with the stigma associated with the disease |
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| 49 |
Dealing with uncertainty |
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| 50 |
Dependence on reminders from family members to take medications |
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| 51 |
Desire for connection and shared experiences |
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| 52 |
Diagnosis of the father |
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| 53 |
Difficulty in keeping up with her changing needs |
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| 54 |
During difficulty sleeping and inability to settle |
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| 55 |
During moments of anxiety |
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| 56 |
During periods of intense worry |
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| 57 |
Emotional impact of realizing the potential risk to future generations |
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| 58 |
Emotional response to the pathology results |
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| 59 |
Experiencing a relapse |
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| 60 |
Experiencing a relapse or worsening of symptoms |
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| 61 |
Experiencing an exacerbated flare of ILD |
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| 62 |
Experiencing coughing and other symptoms |
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| 63 |
Experiencing depression |
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| 64 |
Experiencing difficulty breathing |
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| 65 |
Experiencing ground glass inflammation in the lungs |
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| 66 |
Experiencing low oxygen saturation levels while walking |
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| 67 |
Experiencing lung infections |
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| 68 |
Experiencing setbacks in treatment |
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| 69 |
Experiencing uncertainty and looking for information or suggestions |
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| 70 |
Facing challenges in daily life and work |
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| 71 |
Facing financial challenges |
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| 72 |
Facing financial challenges related to healthcare costs |
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| 73 |
Facing potential decline in exercise ability |
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| 74 |
Facing potential limitations in daily activities |
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| 75 |
Facing potential relapses or complications |
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| 76 |
Facing stigma or discrimination |
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| 77 |
Facing the need for a new treatment option |
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| 78 |
Facing the need for oxygen supplementation |
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| 79 |
Facing the possibility of pulmonary hypertension |
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| 80 |
Facing treatment failures |
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| 81 |
Facing uncertainty about the effectiveness of treatment |
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| 82 |
Facing uncertainty about the future |
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| 83 |
Fear of having IPF |
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| 84 |
Feeling anxious about stepdad's condition and prognosis |
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| 85 |
Feeling depressed and overwhelmed |
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| 86 |
Feeling exposed and in need of support after being diagnosed with ILD |
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| 87 |
Feeling exposed and uncertain about future job prospects |
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| 88 |
Feeling exposed and vulnerable after learning about family history of lung disorders |
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| 89 |
Feeling frustrated and seeking ideas or thoughts from others |
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| 90 |
Feeling isolated or lonely |
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| 91 |
Feeling overwhelmed by medical information |
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| 92 |
Feeling uncertain about the effectiveness of Cellcept |
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| 93 |
Feeling uncertain about the effects of Cellcept on everyday life |
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| 94 |
Feeling uncertain about the future |
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| 95 |
Feeling uncertain about treatment outcomes |
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| 96 |
Feeling upset and scared about the illness |
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| 97 |
Feeling worried for her safety due to declining health |
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| 98 |
Frustration with negative lab test results |
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| 99 |
Hoping for improvement in lung function |
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| 100 |
Lack of available family support |
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| 101 |
Lack of experience and information about the disease |
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| 102 |
Limited support from the retirement community without medical assistance |
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| 103 |
Living far away from her and relying on phone calls for support |
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| 104 |
Making decisions about treatment options |
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| 105 |
Making treatment decisions |
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| 106 |
Managing emotional distress |
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| 107 |
Managing financial burdens |
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| 108 |
Managing life without the support of family or a caregiver |
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| 109 |
Managing seronegative Rheumatoid Arthritis |
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| 110 |
Managing side effects of medication |
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| 111 |
Managing the emotional impact of the diagnosis |
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| 112 |
Managing the emotional toll of hospitalization |
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| 113 |
Managing the impact of the disease on relationships |
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| 114 |
Managing the impact of the disease on work or education |
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| 115 |
Managing the impact on relationships |
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| 116 |
Managing the presence of scar tissue |
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| 117 |
Navigating healthcare system bureaucracy |
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| 118 |
Navigating the absence of a formal diagnosis |
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| 119 |
Navigating the healthcare system and insurance |
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| 120 |
Navigating the healthcare system and treatment options |
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| 121 |
Need for support and help from the siblings |
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| 122 |
Needing guidance on questions to ask the doctor for accurate information |
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| 123 |
Needing guidance on when to consider assisted living or a home health aide |
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| 124 |
Needing support and guidance in finding alternative employment |
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| 125 |
Needing to use oxygen 24/7 |
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| 126 |
Openness to receiving support and guidance regarding preventive measures |
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| 127 |
Panic attacks during doctor visits |
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| 128 |
Prior to diagnosis |
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| 129 |
Receiving a diagnosis of ILD |
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| 130 |
Receiving a diagnosis of IPF |
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| 131 |
Receiving limited information about the condition and treatment |
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| 132 |
Receiving the diagnosis of ILD |
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| 133 |
Receiving the diagnosis of IPF |
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| 134 |
Receiving the initial diagnosis |
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| 135 |
Reluctance to accept assistance or home health aide |
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| 136 |
Seeing the CT scan results |
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| 137 |
Seeking a second opinion |
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| 138 |
Seeking emergency help after not receiving proper care in prison |
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| 139 |
Seeking emotional support and understanding |
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| 140 |
Seeking recommendations for a Smartwatch to monitor oxygen levels continuously |
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| 141 |
Seeking support and advice for atypical clinical manifestations |
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| 142 |
Seeking support and understanding from others |
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| 143 |
Seeking support from loved ones |
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| 144 |
Transitioning between healthcare providers |
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| 145 |
Transitioning from pediatric to adult care |
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| 146 |
Uncertainty about the cause of the disease |
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| 147 |
Uncertainty about the severity of the ILD |
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| 148 |
Uncertainty and anxiety about the possibility of developing ILD |
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| 149 |
Waiting for biopsy results |
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| 150 |
Waiting for test results |
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| 151 |
Waiting for the follow-up appointment |
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| 152 |
Wanting to ensure safety and comfort in her last months or year |
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| 153 |
When adjusting to new medications or treatments |
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| 154 |
When coping with life changes |
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| 155 |
When dealing with emotional triggers |
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| 156 |
When dealing with social pressures |
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| 157 |
When experiencing fatigue and panic feelings |
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| 158 |
When experiencing high levels of stress |
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| 159 |
When experiencing panic attacks |
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| 160 |
When experiencing relationship problems |
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| 161 |
When experiencing symptoms or disease progression |
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| 162 |
When facing challenges or setbacks in treatment |
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| 163 |
When facing challenging situations |
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| 164 |
When facing financial difficulties |
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| 165 |
When feeling anxious and in one's head |
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| 166 |
When feeling devastated and anticipating a confirmed diagnosis |
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| 167 |
When feeling isolated or alone |
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| 168 |
When feeling isolated or alone in dealing with the illness |
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| 169 |
When feeling overwhelmed |
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| 170 |
When feeling overwhelmed by constant reminders of being sick |
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| 171 |
When feeling scared or uncertain about the diagnosis |
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| 172 |
When managing other health issues |
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| 173 |
When oxygen levels drop to 88 |
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| 174 |
When patient experiences new symptoms or side effects |
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| 175 |
When patient feels isolated from family and friends due to their disease |
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| 176 |
When patient feels overwhelmed by managing multiple health conditions |
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| 177 |
When patient is unable to participate in activities they used to enjoy |
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| 178 |
When patient is unsure about the progression of their disease |
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| 179 |
When struggling with uncertainty |
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| 180 |
When walking with oxygen |
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| 181 |
While waiting for the pulmonologist appointment on Jan 24 |
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| 182 |
Wondering about the impact of Cellcept on everyday life |
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| 183 |
Worries about potential side effects (hair loss, sickness) |
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